Stage I: Searching realities and exploring hope and illness beliefs
about thalassemia
Aim: To realize family realities in caring children with thalassemia
Stage II: Considering and making decisions related to the families’
problems and needs, children’s emotional responses, and impact
of thalassemia on children and their families
Aim: To exchange experiences and feelings and encourage social
support among group members
Stage III: Developing ability to manage care by sharing information
and experiences and learning from other families about family
functioning, family management, and family relationships
Aim: To develop ability to manage child care
Stage IV: Strengthening confidence in controlling family situations
in managing child care effectively and effectively participating in
usual daily life activities
Aim: To strengthen confidence in controlling family situations in
managing child care and to reduce personal stress, communicate
effectively in challenging situations, and make tough caregiving
decision
Stage V: Evaluating the FEP
The usual care
Aim: To provide information about thalassemia and child care at
the outpatient department