A related aspect is not sharing the medical view of available treatments
or health status. One participant described her frustration: I
have been to doctors and they have examined me. They say it’s
fibromyalgia. Live with it. (A) She explained that she accepts her diagnosis
and the fact that she probably has to live with pain for the rest of
her life but that she cannot agree to the focus on medication and
painkillers. She is looking for relief and wellbeing outside the medical
establishment, for example by seeing an osteopath regularly. She has
also explored other treatments, such as acupuncture and herbal remedies
with varying degrees of success. Since she has severe pain and
hardly gets out of bed during some periods, she must continue to look
for treatments: Is this something for me or not? At least I tried. (A)
Another participant described her experience of being diagnosed with
asthma as an adult. The doctor told her to take medication: And I
thought, no! I am not going to take medication for the rest of my life. My
attitude was that I wouldn’t do it. Not cortisone and all that. (E) As a
result, she started to search for alternative treatments and ended up
with traditional Chinese medicine, which has helped her a lot with
both asthma and other health issues. Another participant said she had
the impression that some problems, such as back pain, are more or less
neglected by public health care: Back problems are very common, but
sometimes it’s like… I am tall and I work in the health care sector so I
should live with it. (F) From her point of view, no solutions are offered
for these kinds of problems by conventional health care, only management
of symptoms.
A related aspect is not sharing the medical view of available treatmentsor health status. One participant described her frustration: Ihave been to doctors and they have examined me. They say it’sfibromyalgia. Live with it. (A) She explained that she accepts her diagnosisand the fact that she probably has to live with pain for the rest ofher life but that she cannot agree to the focus on medication andpainkillers. She is looking for relief and wellbeing outside the medicalestablishment, for example by seeing an osteopath regularly. She hasalso explored other treatments, such as acupuncture and herbal remedieswith varying degrees of success. Since she has severe pain andhardly gets out of bed during some periods, she must continue to lookfor treatments: Is this something for me or not? At least I tried. (A)Another participant described her experience of being diagnosed withasthma as an adult. The doctor told her to take medication: And Ithought, no! I am not going to take medication for the rest of my life. Myattitude was that I wouldn’t do it. Not cortisone and all that. (E) As aresult, she started to search for alternative treatments and ended upwith traditional Chinese medicine, which has helped her a lot withboth asthma and other health issues. Another participant said she hadthe impression that some problems, such as back pain, are more or lessneglected by public health care: Back problems are very common, butsometimes it’s like… I am tall and I work in the health care sector so Ishould live with it. (F) From her point of view, no solutions are offeredfor these kinds of problems by conventional health care, only managementof symptoms.
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