Conclusions: The combination of a quantitative and
qualitative review, an exploration of best practice in
information design, plus the input of patients at
stakeholder workshops, allowed this review to look at
all perspectives. There is a gap between currently
provided leaflets and information which patients
would value and find more useful. The challenge
is to develop methods of provision flexible enough to
allow uptake of varying amounts and types of
information, depending on needs at different times in
an illness. This review has identified a number of
areas where future research could be improved in
terms of the robustness of its design and conduct, and
the use of patient-focused outcomes. The scope for
this research includes determining the content, delivery
and layout of statutory leaflets that best meet patients’
needs, and providing individualised information, which
includes both benefit and harm information. In
particular, studies of the effectiveness and role and
value of Internet-based medicines information are
needed.