Challenging phase. In this phase, the balance of power is beginning
to shift from health professionals to the family. As the family starts to
question aspects of the child’s care, conflict with health professionals
over control of the child’s health care can develop. The family may become
frustrated, uncertain, and disillusioned, losing trust in health
professionals.
Collaborative phase. Finally, this phase is entered when the family
assumes a new identity by becoming more self-confident and assertive
and less reliant on health professionals. As a full partner in their
child’s care, family members are capable of negotiating with health
professionals, minimizing the effect of the chronic health condition
on the child and siblings, and rearranging roles and responsibilities to
maintain their family life.