Sun protection
People with albinism are highly susceptible to unsightly and potentially disfiguring sun induced skin lesions and cancers. They have the skin type that always burns and never tans. The children in this study, living in a sunny, tropical area, have skin problems throughout the year and were fully aware of their extreme susceptibility to sun-induced damage. Most took measures to reduce their sun exposure, applying creams daily, although half were aqueous creams with no SPF. Although pupils wore their hats regularly, encouraged by the teachers and nurse, many offered insufficient protection to the face and neck. Sunburn lines on the face clearly showed areas that were unprotected by the style of hat worn. The boys favoured baseball style caps which offer inadequate protection to the face and none to the neck. A demonstration of a Legionnaire-style cap with a long flap at the back, offering excellent protection to the neck, was greeted with laughter and derision, several adolescents declaring they would never wear such a hat. Peer image was clearly important; pupils are unlikely to wear protective clothing they consider ugly or conspicuous. Although their unusual appearance makes them immediately noticeable, the children desire to appear as normal and inconspicuous as possible. The children at this school do not have a uniform but wear their own clothes, including hats. At present the school is investigating the possibility of having a school hat, with a sensible wide brim, to be worn by all pupils.
Since application of a cream and wearing a hat were already part of their daily routine, the provision of suitable sunscreens and protective clothing should be effective in increasing protection and reducing the risk of skin cancer (Stern et al., 1986). This is especially important during childhood as 50% of lifetime UV exposure is estimated to occur by age 20, making it desirable to focus prevention efforts on this group. There was evidence of peer support at this school, with pupils reminding each other to wear their hats, encouraging those with skin lesions to go to the nurse and even making sure those with skin sores applied their ointments regularly. The local hospital provides a generic SPF cream for those who find the cost of commercial preparations prohibitive. Although a 3-month supply can be obtained from the hospital, the cost and time involved in travelling to collect this deters many families. Regular visits by the genetic nurse to the school, bringing a supply of protective creams for the school nurse to distribute, would be an effective use of resources. Visits by a specialist dermatologist would also help to treat potentially cancerous skin lesions early. Clinics in rural areas catering to a black population usually have no experience in the type of sun induced ailments suffered by those with pale skin, and cannot offer suitable treatment, often prescribing only an antiseptic ointment. There is also anecdotal evidence that both children and adults with albinism experience antagonism, avoidance and even rudeness when visiting local hospitals. If the suspicion that surrounds albinism extends to medical personnel then those with the condition will be discouraged from obtaining the treatment they require.
ป้องกันแสงแดดคนที่ มีภาวะผิวเผือกมีสูงความไวต่อไม่น่าดู และ disfiguring แดดอาจเกิดผิวหนังได้และมะเร็ง มีผิวที่ไหม้เสมอ และไม่เคย tans เด็กในการศึกษานี้ อาศัยอยู่ในพื้นที่เขตร้อน แสงแดด มีปัญหาเกี่ยวกับผิวหนังตลอดทั้งปี และได้ตระหนักของดวงอาทิตย์ทำให้เกิดความเสียหายของพวกเขาง่ายมาก ส่วนใหญ่ใช้มาตรการเพื่อลดแสงแดดของพวกเขา ใช้ครีมทุกวัน ถึงแม้ว่าครึ่งอควีครีม มี SPF ไม่ แม้ว่านักเรียนสวมหมวกของพวกเขาเป็นประจำ สนับสนุนให้ครูและพยาบาล จำนวนมากเสนอพอป้องกันใบหน้าและลำคอ ชิ้นบรรทัดบนพื้นที่หน้าแสดงให้เห็นอย่างชัดเจนที่ถูกป้องกัน โดยรูปแบบของหมวกที่สวมใส่ หมวกสไตล์ favoured เบสบอลชายที่ป้องกันใบหน้าไม่เพียงพอและไม่มีการคอ สาธิตของ Legionnaire แบบฝาครอบด้วยแผ่นพับยาวที่ด้านหลัง คอ ป้องกันยอดเยี่ยมแห่งนี้มีประทับใจกับเสียงหัวเราะและ derision วัยรุ่นหลายประกาศพวกเขาจะไม่สวมใส่หมวกดังกล่าว รูปเพื่อนสำคัญชัดเจน นักเรียนไม่น่าจะสวมเสื้อผ้าป้องกันที่พวกเขาพิจารณาเป้า หรือน่าเกลียด แม้ว่าลักษณะความผิดปกติทำให้พวกเขาเห็นได้ชัดทันที เด็กต้องปรากฏเป็นปกติ และไม่เด่นที่สุด เด็กโรงเรียนนี้ไม่เหมือน แต่สวมเสื้อผ้าของตัวเอง รวมหมวก ปัจจุบัน โรงเรียนมีตรวจสอบสามารถมีหมวกโรงเรียน มีความเหมาะสมกว้างเปี่ยม การสวมใส่ โดยนักเรียนทั้งหมดSince application of a cream and wearing a hat were already part of their daily routine, the provision of suitable sunscreens and protective clothing should be effective in increasing protection and reducing the risk of skin cancer (Stern et al., 1986). This is especially important during childhood as 50% of lifetime UV exposure is estimated to occur by age 20, making it desirable to focus prevention efforts on this group. There was evidence of peer support at this school, with pupils reminding each other to wear their hats, encouraging those with skin lesions to go to the nurse and even making sure those with skin sores applied their ointments regularly. The local hospital provides a generic SPF cream for those who find the cost of commercial preparations prohibitive. Although a 3-month supply can be obtained from the hospital, the cost and time involved in travelling to collect this deters many families. Regular visits by the genetic nurse to the school, bringing a supply of protective creams for the school nurse to distribute, would be an effective use of resources. Visits by a specialist dermatologist would also help to treat potentially cancerous skin lesions early. Clinics in rural areas catering to a black population usually have no experience in the type of sun induced ailments suffered by those with pale skin, and cannot offer suitable treatment, often prescribing only an antiseptic ointment. There is also anecdotal evidence that both children and adults with albinism experience antagonism, avoidance and even rudeness when visiting local hospitals. If the suspicion that surrounds albinism extends to medical personnel then those with the condition will be discouraged from obtaining the treatment they require.
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