Objectives: To assess the prevalence of considerable burden among caregivers of stroke survivors at 6
months (Time 1) and 5 years after stroke (Time 2), to analyse changes in burden severity over time and to
identify factors associated with the burden.
Methods: Eighty eight patient/caregiver pairs were assessed. Caregiver burden was measured with the
Caregiver Burden Scale. Socio-demographic, stroke-related and psychological characteristics were
analysed as potential determinants of the burden. Exact multiple logistic regression was used to identify
the predictive factors.
Results: Considerable burden was reported by 44% of the caregivers at Time 1 and 30% at Time 2. The
burden was independently associated with caregivers’ sense of coherence and amount of time spent
caregiving at Time 1, and with caregivers’ anxiety at Time 2.
Conclusions: A significant proportion of the caregivers experienced considerable burden in the postacute
and chronic phases of stroke, although this proportion declined over time. Several characteristics
were associated with the increased burden at different time points. All the independent predictors
related to aspects of the carers.
Practice implications: Programmes including education about coping strategies and time management,
as well as respite care provision, could be beneficial and might help to reduce the burden of caregiving.
Objectives: To assess the prevalence of considerable burden among caregivers of stroke survivors at 6months (Time 1) and 5 years after stroke (Time 2), to analyse changes in burden severity over time and toidentify factors associated with the burden.Methods: Eighty eight patient/caregiver pairs were assessed. Caregiver burden was measured with theCaregiver Burden Scale. Socio-demographic, stroke-related and psychological characteristics wereanalysed as potential determinants of the burden. Exact multiple logistic regression was used to identifythe predictive factors.Results: Considerable burden was reported by 44% of the caregivers at Time 1 and 30% at Time 2. Theburden was independently associated with caregivers’ sense of coherence and amount of time spentcaregiving at Time 1, and with caregivers’ anxiety at Time 2.Conclusions: A significant proportion of the caregivers experienced considerable burden in the postacuteand chronic phases of stroke, although this proportion declined over time. Several characteristicswere associated with the increased burden at different time points. All the independent predictorsrelated to aspects of the carers.Practice implications: Programmes including education about coping strategies and time management,as well as respite care provision, could be beneficial and might help to reduce the burden of caregiving.
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