Conclusion
Approximately 14% of infants are admitted to intensive care units after birth (National Perinatal Information System, 2011). For some infants, their lives will end here. How parents are integrated into the care of their children, how they are assisted to make ethical decisions, and how they are treated by providers will be remembered by parents all of their lives. This study contributes to our knowledge of parental wishes to shape how our care of them is derived.