2.3.3 2.3.3. Outcomes
We first calculated item experience scores [IES, 0 ¼ most negative, 3 ¼ most
positive], item priority scores [IPS, 0 ¼ not important, 3 ¼ extremely important] and
quality improvement scores [QIS ¼ (3 IES)*IPS, 0 ¼ low priority, 9 ¼ high priority].
The proportion of negative experiences (PNE) per item represents the percentage of
respondents with an IES of 0 or 1. As expected, most participants were unable to
answer all survey items. In order to do so, PD patients should have consulted all
professionals on the questionnaire and experienced all care aspects in the past year.
Therefore, a mean IESwas calculated for equal care aspects on different professionals.
i.e. scores on“Q22 Did the neurologist listen carefully to you?” and “Q36 Did the PD nurse
specialist listen carefully to you?” were combined into one IES ‘listen carefully’.
Next, subscale experience scores [SES, range 0e3] and an overall patientcenteredness
score [OPS, range 0e3] were calculated. Participants who answered
<50% of the subscale items were excluded from further analysis of the subscale. A
mean SES was calculated by adding up the subscale items and divide it by the total
number of completed subscale items. i.e. the subscale ‘emotional support’ consists of
six items and two of the items are about the patients’ caregiver. When the participant
did not have a caregiver, the SES was calculated from the other four items. No
data-imputation over the missing values was performed
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