compares standards in the recent guidance with parents 'views and experiences of shared decision-making
1) Describe values parents apply to delivery room resuscitation decisions, 2) Describe parents' recall of discussions with physicians. 3) Identify what parents want from physicians as they make delivery room resuscitation decisions
Describe parents' attitudes towards involvement in decision making in the NICU
1) How do bereaved parents handle their grief? 2) What is important to parents during their child's end-of-life (EOL) care? 3) What helped parents cope? 4) What recommendations do parents have for improving EOL care?