Donation Aotearoa has three major arms: new resources for
renal patients and their potential donors to educate them about
transplantation; a community engagement project to raise
awareness of the need for and value of transplantation; and a
home education programme using specially trained staff in new
roles to work with people needing a transplant and their families
(Live Kidney Donation Aotearoa, 2014).The products of this
pilot will be applied in other services across the country.
This leading project is complemented by a range of other
activities. Renal transplantation in New Zealand is being
reconfigured as national service, led by a national clinical
director, facilitating annual goal setting, reporting and quality
improvement activities across all transplanting centres.The New
Zealand Kidney Exchange programme has been established
to enable transplantation for some patients with willing but
incompatible donors, based on a new national protocol and
information resources for potential participants. Supplementing
these activities in live donation, national protocols defining
a consistent process for being placed on the list to receive a
deceased donor organ (National Renal Advisory Board, 2013b)
and allocation of deceased donor organs that become available
(National Renal Advisory Board, 2013c) have been developed
and agreed nationally.
The importance of the consumer perspective in the
management of long-term conditions is becoming prominent
on the national health policy agenda. A centrally funded study
showing the difference between professional and consumer
perspectives among Maori and Pacific people with ESKD
(Ministry of Health, 2009) and a PhD study on people seeking
kidney transplants (Martin, 2013), supported by consumer
advocacy on the NRAB, have made needs as perceived by
renal consumers themselves an area of focus in nephrology.
Responding to the need to increase health literacy among
people with kidney disease, new funding has enabled Kidney
Health New Zealand (KHNZ), the national consumer advocacy
group for renal consumers, to develop a set of online consumer
information resources for people with kidney disease on a
range of topics, from dietary advice to the decision about
whether or not to undertake renal replacement therapy (Kidney
Donation Aotearoa has three major arms: new resources for
renal patients and their potential donors to educate them about
transplantation; a community engagement project to raise
awareness of the need for and value of transplantation; and a
home education programme using specially trained staff in new
roles to work with people needing a transplant and their families
(Live Kidney Donation Aotearoa, 2014).The products of this
pilot will be applied in other services across the country.
This leading project is complemented by a range of other
activities. Renal transplantation in New Zealand is being
reconfigured as national service, led by a national clinical
director, facilitating annual goal setting, reporting and quality
improvement activities across all transplanting centres.The New
Zealand Kidney Exchange programme has been established
to enable transplantation for some patients with willing but
incompatible donors, based on a new national protocol and
information resources for potential participants. Supplementing
these activities in live donation, national protocols defining
a consistent process for being placed on the list to receive a
deceased donor organ (National Renal Advisory Board, 2013b)
and allocation of deceased donor organs that become available
(National Renal Advisory Board, 2013c) have been developed
and agreed nationally.
The importance of the consumer perspective in the
management of long-term conditions is becoming prominent
on the national health policy agenda. A centrally funded study
showing the difference between professional and consumer
perspectives among Maori and Pacific people with ESKD
(Ministry of Health, 2009) and a PhD study on people seeking
kidney transplants (Martin, 2013), supported by consumer
advocacy on the NRAB, have made needs as perceived by
renal consumers themselves an area of focus in nephrology.
Responding to the need to increase health literacy among
people with kidney disease, new funding has enabled Kidney
Health New Zealand (KHNZ), the national consumer advocacy
group for renal consumers, to develop a set of online consumer
information resources for people with kidney disease on a
range of topics, from dietary advice to the decision about
whether or not to undertake renal replacement therapy (Kidney
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