There are a number of reasons for failing to plan. In most states, there are long waiting
lists for residential services. Families may assume that a brother or sister will take over the care
of their sibling with a disability, even though they may not have discussed it with them. They
may lack sufficient information about the many aspects of developing a future plan. Planning by
older parents may be especially stressful as they confront their own mortality and the possibility
that no one will provide their son or daughter with the same degree of love and support. When
asked by The Arc why they did not develop a financial plan, families gave a number of reasons,
such as: procrastination, attorney’s fees too high, not enough money to leave for the family
member, lack of knowledge on how to plan and belief the government’s payment for services is
sufficient.
There are a number of reasons for failing to plan. In most states, there are long waiting
lists for residential services. Families may assume that a brother or sister will take over the care
of their sibling with a disability, even though they may not have discussed it with them. They
may lack sufficient information about the many aspects of developing a future plan. Planning by
older parents may be especially stressful as they confront their own mortality and the possibility
that no one will provide their son or daughter with the same degree of love and support. When
asked by The Arc why they did not develop a financial plan, families gave a number of reasons,
such as: procrastination, attorney’s fees too high, not enough money to leave for the family
member, lack of knowledge on how to plan and belief the government’s payment for services is
sufficient.
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