Inclusion and Exclusion Criteria
Primary qualitative research articles were included in this synthesis if they addressed decision making for critically ill neonates from the parents'
perspective. Articles involved decisions for infants who were being treated in a NICU or whose preterm birth was imminent and for whom resuscitation and treatment decisions were made at birth. Studies in which researchers investigated decision making in older pediatric populations or decisions of a less critical and non-ethical nature, such as immunization decisions, were excluded. Studies were excluded if they focused primarily on decision making from the health provider's perspective.