Theme 4: “People need to talk with people”
Participants identified that they wanted a person knowledgeable with the OPDG to play a role in their use of the OPDG. This theme describes the impact that supportive interactions can have on people that experience marginalization within care and social systems.As described by Melissa, “this would not work as it is,as a paper you give to someone. To make a decision, it’s personal...for example, my aunty would not use
this-older people, others who do not use forms much – they like to talk. That is how they make their decisions.” Participants described their views that the OPDG should be a
supporting element of a broader strategy, involving a trained person (decision coach) who could assist women in obtaining and understanding information and to provide support and build confidence with women such that they could use the information in a way they defined as meaningful and which accurately reflected their context.Sixteen of the 19 participants said that they would consider using the adapted OPDG in the future, but significantly, only 1 of the sixteen stated that they would consider using it without a coach. For those (n = 3) who said they would not use the adapted OPDG, their reasons
were that they felt it was too much like a government form (one participant), and that decisions are too personal to make using a form (two participants).