Semi structured interview schedule was theonly data collection tool for this study. Two different interview schedules were developed for parents and other members of the family. The interview schedule for the parents had initially 25 semi-structured multiple choice type questions and the interview schedule for other members of the family had 10 questions. Interview schedulehad been employed on 5 families for piloting and as a result both the interview schedules had been redeveloped. The final interview schedule for the parents had 18 semi-structured questions and the final interview schedule for other members had 9 questions