The California-based family’s world was rocked when the couple noticed 4-year-old Charlotte was having motor skill difficulties. After numerous trips to doctors, they were told she had Late Infantile NCL Batten Disease CLN6, and 2-year-old sister Gwenyth’s diagnosis came immediately after that. The deadly disease usually claims the lives of those affected between the ages of 6 to 12. However, the Gray family is hoping to beat the clock and they created the Charlotte and Gwenyth Foundation with the goal of raising upwards of $10 million for medical research to cure the disease.