Indirect measures of quality of life such as exercise tolerance and/or the parents' perspective of their child's quality of life have been used .Direct measures to quantify quality of life of teens living with congenital heart disease have been developed ,and studies utilizing these measures are appearia.Qualitative methods have also been employed with teens to elicit their perspective on their quality of life . The past research, both quantitative and qualitative, has focused on cardiac aspects of these teens' lives, such as hospitalization and limitations related to congenital heart disease. As quality of life potentially encompasses all facets of one's life, it is important to consider the teens' voice concerning their perspectives on and reflections of their everyday lives living with congenital heart disease. As teens with chronic health conditions, including congenital heart disease, struggle to gain independence in their lives, they may also struggle with the reality that their lives are different from those of their healthy peers and that their futures will be different. Clinicians, however, often miss the mark or neglect to see what the salient issues are for these teens .