We sought to better understand research decision processes especially in children who tend to
participate extensively in research due to chronic illness.
Methods: To learn more about children’s decision-making in this context, we interviewed 19 young
patients with cystic fibrosis (male n ¼ 7; female n ¼ 12) aged 8e18 years (M ¼ 13 years) at a children’s
hospital in Canada between April and August 2013.