Supportive Care Needs
All participants spoke about their major needs to
care effectively with their children. These themes
were organized into three categories encompassed the
need for information, social and professional support,
and financial support.
Informational Needs
Participants reported that they need information
about the nature of thalassemia, its pattern of
inheritance, the chance of its occurrence, and dealing
with the side effects of treatment. One mother
reported:
“I know that thalassemia is a blood disorder,
but I do not understand how it happens? Why do
children need blood transfusion continuously?
(Participant 13).
Another mother stated