Background: Despite recent improvements in Swedish
stroke care some patients still experience a lack of support
and follow-up after discharge from hospital. In order
to provide good care according to the National Board of
Health and Welfare, systematic evaluations of stroke care
must be performed. Quality indicators in the national
guidelines could be useful when measuring quality of
care in all parts of the stroke care chain.
Aim: To investigate how people with stroke experienced
their care, rehabilitation, support, and participation from
hospital to community care.
Method: Qualitative interviews were performed with 11
people in 2009–2010 covering their experiences of care,
rehabilitation, support, and participation. The interviews
were analysed with qualitative content analysis.
Result: The interviewees were satisfied with their hospital
care, but reported both positive and negative experiences
of the continuing care. Most of them appreciated intense,
specific, and professional rehabilitation, and had experienced
these qualities in the rehabilitation they received in
most parts of the stroke care chain. Those who received
support from the community services expressed satisfaction
with the staff, but also felt that autonomy was lost.
Several did not feel involved in the health care planning,
but instead relied on the judgement of the staff.
Conclusion: To ensure high quality throughout the whole
stroke care chain, people with stroke must be invited to
participate in the care and the planning of care. To offer
evidence-based stroke rehabilitation, it is important that
the rehabilitation is specific, intense, and performed by
professionals, regardless of where the rehabilitation is
performed. A changed view of the patient’s autonomy in
residential community services should be developed, and
this process must start from the staff and residents.
Background: Despite recent improvements in Swedishstroke care some patients still experience a lack of supportand follow-up after discharge from hospital. In orderto provide good care according to the National Board ofHealth and Welfare, systematic evaluations of stroke caremust be performed. Quality indicators in the nationalguidelines could be useful when measuring quality ofcare in all parts of the stroke care chain.Aim: To investigate how people with stroke experiencedtheir care, rehabilitation, support, and participation fromhospital to community care.Method: Qualitative interviews were performed with 11people in 2009–2010 covering their experiences of care,rehabilitation, support, and participation. The interviewswere analysed with qualitative content analysis.Result: The interviewees were satisfied with their hospitalcare, but reported both positive and negative experiencesof the continuing care. Most of them appreciated intense,specific, and professional rehabilitation, and had experiencedthese qualities in the rehabilitation they received inmost parts of the stroke care chain. Those who receivedsupport from the community services expressed satisfactionwith the staff, but also felt that autonomy was lost.Several did not feel involved in the health care planning,but instead relied on the judgement of the staff.Conclusion: To ensure high quality throughout the wholestroke care chain, people with stroke must be invited toมีส่วนร่วมในการดูแลและการวางแผนการดูแล ได้เสนอฟื้นฟูสมรรถภาพตามหลักฐานจังหวะ มันเป็นสิ่งสำคัญที่ฟื้นฟูเป็นเฉพาะ รุนแรง และดำเนินการโดยผู้เชี่ยวชาญ ที่จะฟื้นฟูการดำเนินการ เปลี่ยนมุมมองเป็นอิสระของผู้ป่วยในบริการชุมชนที่อยู่อาศัยควรมีพัฒนา และกระบวนการนี้ต้องเริ่มจากพนักงานและผู้อยู่อาศัย
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