I was diagnosed with Sjogren's syndrome when I was 19. I am now 55. I have a great rheumatologist who sees me every eight weeks. I take hydroxychloroquine twice a day, use eye drops a lot, and drink water constantly. I had to have my left parotid gland removed when I was 20. I was diagnosed with a tumor in my sinus cavity in my 42nd year. My doctor had a biopsy done and I was diagnosed with a rare form of cancer called amyloidosis. They took a bone marrow sample and did a total skeletal scan and did not find it anywhere else in my body. The tumor is still there because it envelops the bone beneath my eye. They cleaned out everything in my left sinus cavity to allow for better airflow. Now I am struggling with my legs and feet swelling, keeping my vitamins B12 and D up and my liver counts down. At times I am exhausted but for the most part I live a fairly normal life.