Abstract
Background: Dementia is a life-limiting disease without curative treatments. Patients and families may need palliative care specific
to dementia.
Aim: To define optimal palliative care in dementia.
Methods: Five-round Delphi study. Based on literature, a core group of 12 experts from 6 countries drafted a set of core domains
with salient recommendations for each domain. We invited 89 experts from 27 countries to evaluate these in a two-round online
survey with feedback. Consensus was determined according to predefined criteria. The fourth round involved decisions by the core
team, and the fifth involved input from the European Association for Palliative Care.
Results: A total of 64 (72%) experts from 23 countries evaluated a set of 11 domains and 57 recommendations. There was immediate
and full consensus on the following eight domains, including the recommendations: person-centred care, communication and shared .