Simon Moore, 30, has Treacher Collins Syndrome – which is characterised by craniofacial deformities such as the absence of cheekbones.
He is also profoundly deaf and spent much of his childhood indoors to escape bullies. Simon said he still finds strangers pointing and staring at him.
But despite his own ordeal, the full-time dad and his wife Vicky decided to keep daughter Alice when scans showed she also had the condition, which affects 1 in 50,000 births.