Data analysis
Interviews were analysed thematically by CM and involved
repeatedly moving back and forth between the transcripts, coding
responses, creating categories to link codes and identifying
themes [23]. Discussion of emerging codes and themes occurred
with the research team (A.M., J.G.) to ensure analysis and
interpretation was anchored in the data [29]. Key quotes
illustrating themes were identified [30]. The codes identified
were then mapped to the ICF-CY category that most precisely
corresponded to the code. For example, the thematic analysis code
‘‘making choices’’ was mapped to the ICF-CY category of ‘‘d177
making decisions’’ (see Table 3 for examples). Responses relating
to children’s activities and participation were divided into the
following ICF-CY domains: (i) learning and applying knowledge,
(ii) general tasks and demands, (iii) communication, (iv) mobility,
(v) self-care, (vi) domestic life, (vii) interpersonal interactions and
relationships, (viii) major life areas and (ix) community, social
and civic life.
Reported barriers and facilitators of activity and participation
were categorised according to the contextual factors component of
the ICF-CY, which addresses the following: (i) products and
technology; (ii) natural environment and human-made changes to
environment, (iii) support and relationships, (iv) attitudes,
(v) services, systems and policies and (vi) personal factors.
To confirm the accuracy of findings, results from the thematic
analysis and the mapping of codes to the ICF-CY were discussed
Table 1. Child and parent demographic characteristics.
Child variables
among authors until a consensus was reached.