Personally, I knew who was who. [Mod:
Okay.] But it was difficult to know who to
raise issues or concerns to. [Mod: Okay,
can you speak a bit more about that?]
Ahh, I can’t. I was trying to rack my brain
the last few days. He passed away in April
so it kind of gets, what I remember, I was, I
kind of sensed that hospice didn’t quite
have their pulse on his day to day, like they
would come and talk to him, interview him
or whatever, just chat with him, always
seemed pretty good. But he had moments
of real confusion and anguish because [of]
his confusion. And they didn’t seem to see
that and I don’t blame them (68-year-old
participant whose father died in a NH
from a cerebrovascular accident).
This is contrasted with the experience of an