The center continues to monitor its efforts to
insure that it accomplishes its objectives. The
Family Support Center has utilized both university-
based researchers and a staff researcher
to carry out program evaluations and research
relevant to its mission. The staff researcher has
studied the psychological and program barriers
to help seeking for care-givers of dementia
patients. Understanding these barriers has
helped to insure that the center tailors its program
to reach its target audiences.
How staff and volunteers relate to and work
with the consumers of the center also is a key to
its success. It is very important when working
with families to understand the process they go
through in adapting to an illness and/or one’s
role in helping an ill family member. Taking on
the role of care-giver is not easy for most people.
It involves several critical transition points including
acknowledging the infirmity of the individual;
accepting responsibility to provide
physical care; making care decisions with or for
the person, especially if dementia is involved;
and arranging for formal services and/or institutionalization
for their loved ones. These
decisions are often fraught with a great deal of
conflict and emotional turmoil.
Experienced staff and volunteers understand
that individuals need time and on-going support
in order to confront and deal with these issues
emotionally and practically. Developing a relationship
over time is an important component of
providing support for families coping with
chronic illness. The staff member can be a valued
contact person whose support and knowledge
may not be needed for long periods of time, but
for whom the patient or family care-giver is
grateful if a special need arises. Time allows trust
to build and information to be provided to
families in small doses and in timely fashion. The
on-going relationship the center maintains with
families offers the opportunity to deliver the
message of ways to maintain health and utilize
both formal and informal support through a
variety of mechanisms, including newsletters,
one-to-one contact, and classes, all of which
reinforce the philosophy of the center.
The professional is consultant rather than
manager of care or maker of care decisions. It is
important that providers always view the caregiver
(or patient) as the person in charge. The
philosophy of Legacy Family Support Services is
embedded in its motto, ‘You’re not alone.’ The
center provides families with the tools they need
to be active and respected partners in their own
or their affected family member’s care while they
are empowered to advocate and manage the
quality of their own lives in the process.
The center continues to monitor its efforts toinsure that it accomplishes its objectives. TheFamily Support Center has utilized both university-based researchers and a staff researcherto carry out program evaluations and researchrelevant to its mission. The staff researcher hasstudied the psychological and program barriersto help seeking for care-givers of dementiapatients. Understanding these barriers hashelped to insure that the center tailors its programto reach its target audiences.How staff and volunteers relate to and workwith the consumers of the center also is a key toits success. It is very important when workingwith families to understand the process they gothrough in adapting to an illness and/or one’srole in helping an ill family member. Taking onthe role of care-giver is not easy for most people.It involves several critical transition points includingacknowledging the infirmity of the individual;accepting responsibility to providephysical care; making care decisions with or forthe person, especially if dementia is involved;and arranging for formal services and/or institutionalizationfor their loved ones. Thesedecisions are often fraught with a great deal ofconflict and emotional turmoil.Experienced staff and volunteers understandthat individuals need time and on-going supportin order to confront and deal with these issuesemotionally and practically. Developing a relationshipover time is an important component ofproviding support for families coping withchronic illness. The staff member can be a valuedcontact person whose support and knowledgemay not be needed for long periods of time, butfor whom the patient or family care-giver isgrateful if a special need arises. Time allows trustto build and information to be provided tofamilies in small doses and in timely fashion. Theon-going relationship the center maintains withfamilies offers the opportunity to deliver themessage of ways to maintain health and utilizeboth formal and informal support through avariety of mechanisms, including newsletters,one-to-one contact, and classes, all of whichreinforce the philosophy of the center.The professional is consultant rather thanmanager of care or maker of care decisions. It isimportant that providers always view the caregiver(or patient) as the person in charge. Thephilosophy of Legacy Family Support Services isembedded in its motto, ‘You’re not alone.’ Thecenter provides families with the tools they needto be active and respected partners in their ownor their affected family member’s care while theyare empowered to advocate and manage thequality of their own lives in the process.
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