Good doctor-patient communication about the diagnosis and shared decision making over treatment are crucial and have a protective effect on patients’ psychological adjustment,5 and useful guidelines on how to impart the diagnosis are available.6 Little attention has been paid to what, or how, children should be told about the diagnosis, however; the responsibility seems to be left largely to the unaided parents. Information and guidelines for doctors are urgently needed so that they can help families with this difficult task.