(includes abstract) Zajicek-Farber, Michaela; Lotrecchiano, Gaetano; Long, Toby; Farber, Jon; Maternal & Child Health Journal, 2015 Aug; 19 (8): 1744-55. (journal article - research, tables/charts) ISSN: 1092-7875 PMID: 25724538 CINAHL AN: 2013076715
Abstract: Life course theory sets the framework for strong inclusion of family centered care (FCC) in quality medical homes of children with neurodevelopmental disabilities (CNDD). The purpose of this study was to explore the perceptions of families with their experiences of FCC in medical homes for CNDD. Using a structured questionnaire, the Family- Centered Care Self- Assessment Tool developed by Family Voices, this study surveyed 122 parents of CNDD in a large urban area during 2010-2012. Data collected information on FCC in the provision of primary health care services for CNDD and focused on family-provider partnerships, care setting practices and policies, and community services. Frequency analysis classified participants' responses as strengths in the 'most of the time' range, and weaknesses in the 'never' range. Only 31 % of parents were satisfied with the primary health care their CNDD received. Based on an accepted definition of medical home services, 16 % of parents reported their CNDD had most aspects of a medical home, 64 % had some, and 20 % had none. Strengths in FCC were primarily evident in the family-provider partnership and care settings when focused on meeting the medical care needs of the child. Weaknesses in FCC were noted in meeting the needs of families, coordination, follow-up, and support with community resources. Improvements in key pediatric health care strategies for CNDD are recommended. CNDD and their families have multifaceted needs that require strong partnerships among parents, providers, and communities. Quality medical homes must include FCC and valued partnerships with diverse families and community-based providers.
Subjects: Parental Attitudes; Family Centered Care; Primary Health Care; Parents of Disabled Children Psychosocial Factors; Developmental Disabilities Psychosocial Factors; Life Experiences; Adult: 19-44 years; Infant: 1-23 months; Child, Preschool: 2-5 years; Child: 6-12 years; Male; Female
(รวมบทคัดย่อ) Zajicek-Farber, Michaela Lotrecchiano, Gaetano ยาว Toby Farber จอน แม่และเด็กสุขภาพสมุด 2015 Aug 19 (8): 1744-55 (บทความสมุด - วิจัย ตาราง/แผนภูมิ) นอก: 1092-7875 PMID: 25724538 CINAHL: 2013076715Abstract: Life course theory sets the framework for strong inclusion of family centered care (FCC) in quality medical homes of children with neurodevelopmental disabilities (CNDD). The purpose of this study was to explore the perceptions of families with their experiences of FCC in medical homes for CNDD. Using a structured questionnaire, the Family- Centered Care Self- Assessment Tool developed by Family Voices, this study surveyed 122 parents of CNDD in a large urban area during 2010-2012. Data collected information on FCC in the provision of primary health care services for CNDD and focused on family-provider partnerships, care setting practices and policies, and community services. Frequency analysis classified participants' responses as strengths in the 'most of the time' range, and weaknesses in the 'never' range. Only 31 % of parents were satisfied with the primary health care their CNDD received. Based on an accepted definition of medical home services, 16 % of parents reported their CNDD had most aspects of a medical home, 64 % had some, and 20 % had none. Strengths in FCC were primarily evident in the family-provider partnership and care settings when focused on meeting the medical care needs of the child. Weaknesses in FCC were noted in meeting the needs of families, coordination, follow-up, and support with community resources. Improvements in key pediatric health care strategies for CNDD are recommended. CNDD and their families have multifaceted needs that require strong partnerships among parents, providers, and communities. Quality medical homes must include FCC and valued partnerships with diverse families and community-based providers.Subjects: Parental Attitudes; Family Centered Care; Primary Health Care; Parents of Disabled Children Psychosocial Factors; Developmental Disabilities Psychosocial Factors; Life Experiences; Adult: 19-44 years; Infant: 1-23 months; Child, Preschool: 2-5 years; Child: 6-12 years; Male; Female
การแปล กรุณารอสักครู่..
