The silos in which systems of care operate (i.e., the provision of services separately from education, health and community sectors) appear to be especially exhausting for families due to the lack of coordination and continuity of care for families across sectors and the lifespan. Parents talked about wanting “a place or a person to connect it all together”. The adoption of a ‘key worker’ model of service delivery, where one person acts as a single point of contact to help a family navigate supports and services across sectors, could dramatically decrease burden on families (Drennan, Wagner &
Rosenbaum, 2005). Similarly, implementation of the wraparound process, a system-level intervention to integrate care across sectors, might improve the experiences of families (Bruns et al., 2011). Furthermore, multi-agency and multi-sectoral steering committees for service and policy development that include parents are imperative to decreasing systemic barriers to care. A lifespan approach that recognizes that skill development continues beyond early childhood, and integrated, seamless services targeted to the individual needs of the child with ASD and his or her family across
environments, could have profound effects on child and family wellbeing, and perceptions and experiences of FCC
The silos in which systems of care operate (i.e., the provision of services separately from education, health and community sectors) appear to be especially exhausting for families due to the lack of coordination and continuity of care for families across sectors and the lifespan. Parents talked about wanting “a place or a person to connect it all together”. The adoption of a ‘key worker’ model of service delivery, where one person acts as a single point of contact to help a family navigate supports and services across sectors, could dramatically decrease burden on families (Drennan, Wagner &Rosenbaum, 2005). Similarly, implementation of the wraparound process, a system-level intervention to integrate care across sectors, might improve the experiences of families (Bruns et al., 2011). Furthermore, multi-agency and multi-sectoral steering committees for service and policy development that include parents are imperative to decreasing systemic barriers to care. A lifespan approach that recognizes that skill development continues beyond early childhood, and integrated, seamless services targeted to the individual needs of the child with ASD and his or her family acrossenvironments, could have profound effects on child and family wellbeing, and perceptions and experiences of FCC
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