1) Building a trusting relationship between the researcher and the group of family caregivers and children with thalassemia
2) Exploring the families’ expectations about child health
3) Discussing their illness beliefs and experiences in caring for children
with thalassemia
1) Inviting the group to discuss family problems and needs as well as
the needs for healthcare services
2) Encouraging the group to exchange their responses to children’s
emotions
3) Commending their abilities in making decisions related to family
problems and needs linked with children’s coping and management
of the disease
1) Asking interventive questions
2) Offering new facilitating beliefs about the family’s functioning 3) Providing updated information about treatment for thalassemia 4) Reassuring the families about their competencies and resources
when caring for their thalassemia children and themselves
1) Reducing personal stress by observing stress symptoms, discovering
cause of stress, changing beliefs related to stress, and practice
self-care and relaxation techniques
2) Expressing feelings, personal needs, and problems effectively by
practicing communication skills,
3) Communicating effectively in challenging situations by asking for
help about thalassemia child care, talking to the doctor about
children’s treatments
4) Making tough caregiving decisions during transitional phases 5) Creating family network
1) Reflecting about changes in family care and confidence
2) Offering reflections about observed changes and discussing
additional plans or new ideas related to child-care practices that the
family would like to try at home
1) Offering health education related thalassemia by health-care
professionals at each visit
2) Arranging genetic counseling for each family by hematologist 3) Discussing families’ ability in taking care of children with
thalassemia